Oregon toddler receives life-changing surgery to correct rare eye syndrome: ‘Sassier, more energetic’

The child, who is now 2, was born without the ability to open her eyes fully

A toddler recently received life-changing surgery after she suffered from droopy eyelids from the time she was born. 

Lily Etherton is a two-year-old from Salem, Oregon, who was born with blepharophimosis ptosis epicanthus inversus syndrome (BPES). 

The condition meant she was not able to open her eyes fully, according to SWNS. 

As Etherton grew and began walking, her parents Ashley and Erik Etherton said their toddler would easily fall and bump into things.

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"She kept getting hurt … always having bruises on her legs and bumps on her head," Ashley Etherton told SWNS. 

Ashley Etherton, a stay-at-home mom, said she'd often have to physically pull up her daughter’s eyelids so that the child could see. 

Toddler before surgery

Lily Etherton was born with a rare syndrome that caused her eyes to droop.  (SWNS)

The parents decided that Lily Etherton needed surgery to help lift her eyes, as they grew concerned about her physical development and didn’t want her eye issue to delay anything.

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"It causes developmental delays and vision impairment [if] you’re walking, jumping [and] you’re learning to do things you need your eyes [for]," the mom told SWNS. 

Lily Etherton after surgery

After surgery, little Lily Etherton opened her eyes wide for the first time on her own.  (SWNS)

In Sept. 2023, the Ethertons spoke with Dr. Ramon Medel, an orbital and lacrimal surgery specialist in Spain, about how they could help correct their daughter’s vision issues. 

Ashley Etherton said Medel offered to perform a non-FDA approved surgery on their daughter — so the family, with their daughter's best interests in mind, flew to Spain.

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The surgery cost tens of thousands of dollars, according to SWNS, and the Ethertons said it was all out of pocket for them — so the family felt forced to fundraise for the procedure, as they could otherwise not afford it. 

Ashley Etherton shared with others on the fundraising platform Go Fund Me that her daughter "lack[ed] the muscle development that is used to open your eyes, blink, close, etc."

Toddler after surgery

Lily Etherton can now see more clearly and has better eyesight after the surgery.  (SWNS)

Prior to the surgery, Ashley Etherton spent 40 hours a week for four months fundraising for the operation by making desserts to sell, holding benefit raffles and telling the community her daughter’s story. 

The Ethertons raised roughly $32,000 during that time — enough for the surgery, flights to Spain, the hotel stay and more, SWNs reported. 

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"I was so tired when the surgery came," Ashley Etherton recalled. 

The surgery was a success — and Ashley Etherton said Lily Etherton is now "sassier, sillier and more energetic."

Toddler before and after

A toddler had surgery by a specialist in Spain to allow her to open her eyes.  (SWNS)

Ashley Etherton told SWNS that she plans to invest the remainder of the raised money to help Medel as he seeks FDA approval for the life-changing surgery he completed on her daughter. 

Fox News Digital reached out to surgeon Medel and mom Ashley Etherton for additional comments and updates.

On TikTok, the mom shared with others about her daughter's improved eyesight, "Surgery made this possible. [She is now] able to see the world as we can."

She added, "Seeing more and preserving her vision was all we wanted to do."

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Brittany Kasko is a lifestyle production assistant with Fox News Digital. 

Authored by Brittany Kasko via FoxNews March 27th 2024